When I gave birth to Ava I never saw her, all I remember is seeing her feet as she was placed on top of me for two seconds before she was taken to be resuscitated. It was the single most scariest thing I’ve ever been through in my life. I felt so detached from Ava,… Continue reading A Thank You To My Midwife
I obviously don’t mean prison,but then again it might as well be. Except if this were prison I have an indefinite sentence … Since my son was born I have lost count on how many hospital admissions Ava has had, it’s really been that many. I feel guilty Ava spends her life in a hospital… Continue reading Life Behind Bars
I’ve said many a time and again I’d like to reiterate, it is was it is , Ava wouldn’t be Ava if she didn’t have CHARGE syndrome. I’d never have learnt to love her big blue eyes that can literally tell me all I need to know about what she’s feeling. I’d never have learnt… Continue reading The Lips That Can’t Kiss
So, Ava can not sit unaided and her muscle tone is very poor, she also has a tendency to lop to one side. To aid her she is being fitted with a specialist chair today that should help build her strength. We already have a chair called a “tumble forms” and it’s actually helped loads… Continue reading An Exciting Day
You know, I’ve never been one to pass judgement or tell people how they should be, but maybe I should… And maybe I’ll be hated for it but I don’t care … This is a note to the parents I see every day on social media or in everyday life complaining that their child keeps… Continue reading To The Parents That Moan About “Normal” things…
takechargewith2 