If I’m honest, I’ve started this blog 8 months later and a lot of what we went through has faded in my memory. Mainly because I have chosen to block out such a horrific time, and it’s not something I’ve thought about over again because truth be told, it’s horrific. The Things I’ve witnessed, not… Continue reading Nervous Twitch And Clock Watching
As if it wasnt bad enough your daughter was going through all she was I travelled up to London with my mum and stepdad to see Ava, the first time they had seen her outside of intensive care. That morning I had phoned to check up before I set off on the trains, a nurse… Continue reading Brush With Death
As I’ve mentioned before, we spent 6 months in hospital most of that was at GOSH. As you can imagine during that time we made it in and out of different wards and were well known amongst all the seniors there. It’s a very specialist hospital, a lot of children are there long term and… Continue reading You’re Daughter Is Going To Die
After my daughter had had her emergency surgery that Sunday morning, I’ll never forget her surgeon walking past me as he was about to go on giving me a salute and a nod, the day before he had said to me he hoped she could wait a couple more days – clearly she couldn’t so… Continue reading Pieces of the Puzzle
What’s that? Charge syndrome? I’ve never heard of it and I bet most people who read this will go what? Yes, it exists and it is horrible! Don’t get me wrong it’s taught me so many things but there are so many complications, life limiting and threatening conditions. We arrived at GOSH non the wiser,… Continue reading CHARGE Syndrome
When you have a new baby you can’t wait to take them home and start living a normal life! That never happened for me! If you’ve read my previous posts you would have see that when Ava was born she required extensive treatment and CPR. I never got to see her for around 24 hours… Continue reading 6 Months in hospital …
Before we get back to The story that lead to me here, today is a hard day. I’m almost 27 weeks pregnant with my second baby and my little girl is 8 months old. She has many many needs. We went to my families house this weekend and had a Buffett style feast, it was… Continue reading Some Days Are Hard…
