What’s that? Charge syndrome? I’ve never heard of it and I bet most people who read this will go what? Yes, it exists and it is horrible! Don’t get me wrong it’s taught me so many things but there are so many complications, life limiting and threatening conditions. We arrived at GOSH non the wiser,… Continue reading CHARGE Syndrome
Before we get back to The story that lead to me here, today is a hard day. I’m almost 27 weeks pregnant with my second baby and my little girl is 8 months old. She has many many needs. We went to my families house this weekend and had a Buffett style feast, it was… Continue reading Some Days Are Hard…
My aim of this blog, is nothing more then a personal diary of my own to document what has happend in the last 8 months and for the impeding future. I want a black and white document of what we have endured so that I can look back full of emotion. Raw emotion. To look… Continue reading “Can I Finish My Dinner First Please??”
takechargewith2 