She has such a movie star name doesn’t she? She’s worthy of that and SO much more. It’s been such a long time since I blogged about this princess. Truth is; I just haven’t had the strength to blog about her because to be honest, it’s mentally draining. She has, and is going through so… Continue reading Ava Appleby
So many people time and time again question how I do it? Do what? Be a parent, a mum? I just do, just like every other mum I know. The days you don’t hear from me, the days I lay low are the days I admit to myself that it’s overwhelming, that I need time… Continue reading Carer vs Mother
When you were born and we learnt of your condition(s) I lost all hope. Any dreams and aspirations that I had been playing out in my mind for the last 9 months had gone. I didn’t believe that any of that was possible, I fully and whole hearted believed you would be better off if… Continue reading To My Daughter…
This morning; I woke up as usual, the same way I always am with my one year old son screaming for his milk and my 2 year old coughing away choking on her salvia. I dragged myself out of bed with my heavy ever growing baby bump, gave Steven his milk to buy me some… Continue reading Sleep Deprived Parents
I shared a beautifully written poem today on social media. It is so simple but so poignant, it was short, but so eloquently written. It summed up in a few verses life with Ava and how people portray her. I’ve learnt a lot about myself and people since I have had my daughter. I’ve learnt… Continue reading Different
This is a bit of a weird one, my partner and I had a discussion the other day about how when another child is sick, and I mean just your average poorly, we struggle to empathise. It’s not because I am heartless or cold or all reasons like that, it’s purely because I think when… Continue reading Feeling empathy and sympathy to other families…
Every now and then I find myself looking through Ava’s memory box and I have a good cry. I always rummage through and reflect back on the moment in time she first wore her teeny tiny sleepsuit, she was 2 weeks old and she had worn nothing but a nappy since the day she was… Continue reading Memory Box
As a sort of “ritual” I check out my ‘on this day..’ On Facebook. One thing that really struck a cord with me was that this time last year I didn’t put one single post up on my page. It’s blatantly obvious as to why, it was my daughters first Christmas and due to some… Continue reading Christmas
A letter to a former me If I could go back two years I wish I could give myself the pep talk I so desperately need right now. I would tell myself that it is all meant to be, that Your first born will be very sick but, it’s going to be okay. She will… Continue reading A Letter To The Former Me
I’ve said many a time and again I’d like to reiterate, it is was it is , Ava wouldn’t be Ava if she didn’t have CHARGE syndrome. I’d never have learnt to love her big blue eyes that can literally tell me all I need to know about what she’s feeling. I’d never have learnt… Continue reading The Lips That Can’t Kiss
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