I shared a beautifully written poem today on social media. It is so simple but so poignant, it was short, but so eloquently written. It summed up in a few verses life with Ava and how people portray her. I’ve learnt a lot about myself and people since I have had my daughter. I’ve learnt… Continue reading Different
Recently in the area that I live, the disabled community have been getting a right bashing about parking. A local supermarket has supposedly put even more disabled bays in their car park and shock horror they have moved the mother and child bays further away from the store. Now as not only a mother, I… Continue reading Disabled Parking
This is a bit of a weird one, my partner and I had a discussion the other day about how when another child is sick, and I mean just your average poorly, we struggle to empathise. It’s not because I am heartless or cold or all reasons like that, it’s purely because I think when… Continue reading Feeling empathy and sympathy to other families…
Every now and then I find myself looking through Ava’s memory box and I have a good cry. I always rummage through and reflect back on the moment in time she first wore her teeny tiny sleepsuit, she was 2 weeks old and she had worn nothing but a nappy since the day she was… Continue reading Memory Box
Someone once asked me, “how do you cope knowing your child is deaf and will never hear you?” To be honest at the time the thought never entered my head as something that I wouldn’t or shouldn’t be able to cope with. We never expected Ava to have medical issues, least of all to be… Continue reading Silence
To the parents that lost their shit today. because the nurses and doctors put my child first and not yours, I’m sorry. Actually I’m not sorry, because do you know what? I’ve endured 3 months in this hospital with my daughter fighting for her life, endless, tests, blood transfusions and operations and you are here… Continue reading My Daughter comes before your son.
When did life become so complicated? Ava’s been in hospital for pretty much 3 months now and it’s ridiculous, I’ve watched her fighting, crying, bleed out, had endless needles and catheters put in her. I’ve watched her writhing round in pain, begging me with her eyes to take away the pain, and all I can… Continue reading My Special Boy
My daughter. My inspiration, my fighter and THE bravest girl I know. I put a lot of stuff up about our family “oh look another hospital appointment” but I want to make people see how hard having a medically complex daughter is, okay hard isn’t exactly the right word! It’s exhausting, mind numbing, overwhelming, upsetting,… Continue reading Operations…
I cling onto memories, snapshots of my life and when I revisit something that stirs old memories it gets me thinking. These sofas I have sat on hundreds of times, if you’re a regular at GOSH you will recognise them. I’ve sat on these patiently waiting for my little fighter to come out of… Continue reading
It’s on a day like today I’ve made a 30 mile trip to the underground station to go and see Ava in gosh that I find some perspective on things. Yea things are pretty shit, but I’ll never forget last year doing this journey EVERY day…. I was also pregnant at the time. And do… Continue reading Perspective
