Since before Christmas Ava has unfortunately been very unwell and has had 3 operations, she is due to go for her fourth one today. Life is this fast lane is hard! Life with a special needs child is never ending, it’s like someone has thrown a grenade at you and told you to run. Just… Continue reading The Struggle
She has such a movie star name doesn’t she? She’s worthy of that and SO much more. It’s been such a long time since I blogged about this princess. Truth is; I just haven’t had the strength to blog about her because to be honest, it’s mentally draining. She has, and is going through so… Continue reading Ava Appleby
I was so looking forward to Christmas in the Appleby household this year. Ava being three and so much more advanced than she was last year I was hoping she would enjoy and grasp the concept… Oh how wrong I was. She knew things were going on, but nothing could prepare me for the morning… Continue reading That Time Of Year Again
It has always been a childhood dream of mine (pretty sure it’s all kids dreams!) To visit Disneyland. We were extremely fortunate to be given an all expenses paid holiday for the whole family. Ava visits a hospice called Little Havens and they offer respite for the whole family, they allow her to be a… Continue reading Disneyland
This morning; I woke up as usual, the same way I always am with my one year old son screaming for his milk and my 2 year old coughing away choking on her salvia. I dragged myself out of bed with my heavy ever growing baby bump, gave Steven his milk to buy me some… Continue reading Sleep Deprived Parents
This is a bit of a weird one, my partner and I had a discussion the other day about how when another child is sick, and I mean just your average poorly, we struggle to empathise. It’s not because I am heartless or cold or all reasons like that, it’s purely because I think when… Continue reading Feeling empathy and sympathy to other families…
Someone once asked me, “how do you cope knowing your child is deaf and will never hear you?” To be honest at the time the thought never entered my head as something that I wouldn’t or shouldn’t be able to cope with. We never expected Ava to have medical issues, least of all to be… Continue reading Silence
My daughter. My inspiration, my fighter and THE bravest girl I know. I put a lot of stuff up about our family “oh look another hospital appointment” but I want to make people see how hard having a medically complex daughter is, okay hard isn’t exactly the right word! It’s exhausting, mind numbing, overwhelming, upsetting,… Continue reading Operations…
Ava’s been in hospital for over 2 weeks in a space of a month. It’s been testing both my physical and mental health, we’ve have fevers of 40 and endless washing of clothes and bed sheets, it’s relentless. I sat the other night scrolling through my Facebook, my timeline filled with wonderful pictures of children,… Continue reading It Will Happen, Just Not Today…
Since my youngest was born (15 weeks ago) Ava has had 5 hospital admissions, 3 of which resulted in more then 1 nights stay at either our local or specialist hospital. We don’t know an awful lot about her autonomic system – but we do know it’s perhaps not working as it should and he… Continue reading A Constant Battle
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