You know, I’ve never been one to pass judgement or tell people how they should be, but maybe I should… And maybe I’ll be hated for it but I don’t care … This is a note to the parents I see every day on social media or in everyday life complaining that their child keeps… Continue reading To The Parents That Moan About “Normal” things…
I’d been good for too long, a good couple of weeks or so, and today it shows I’m still not “well”. Both of my children have been testing to say the least, I have Ava who has been in hospital poorly and now home but still poorly on endless medication and generally all round not… Continue reading The Inevitable
After my daughter had had her emergency surgery that Sunday morning, I’ll never forget her surgeon walking past me as he was about to go on giving me a salute and a nod, the day before he had said to me he hoped she could wait a couple more days – clearly she couldn’t so… Continue reading Pieces of the Puzzle
What’s that? Charge syndrome? I’ve never heard of it and I bet most people who read this will go what? Yes, it exists and it is horrible! Don’t get me wrong it’s taught me so many things but there are so many complications, life limiting and threatening conditions. We arrived at GOSH non the wiser,… Continue reading CHARGE Syndrome
After meeting my current fiancé 2 years prior, we’d had a turbulent relationship to say the least! We had been on multiple breaks until we had parted for what we thought was good. Fate has a funny way of turning things round for you. After two months of sleepless and teary nights; and to be… Continue reading Breakup, Make Up & A Baby With Additional needs.