Since before Christmas Ava has unfortunately been very unwell and has had 3 operations, she is due to go for her fourth one today. Life is this fast lane is hard! Life with a special needs child is never ending, it’s like someone has thrown a grenade at you and told you to run. Just… Continue reading The Struggle
She has such a movie star name doesn’t she? She’s worthy of that and SO much more. It’s been such a long time since I blogged about this princess. Truth is; I just haven’t had the strength to blog about her because to be honest, it’s mentally draining. She has, and is going through so… Continue reading Ava Appleby
Something I always feel really bad about is that when you have a medically fragile child, if you have other children that are seemingly “healthy” their illnesses are never really that bad. I often find myself saying “oh it’s just a cold”, “just a little virus”… But this week I felt really guilty. My youngest… Continue reading Poorly Ralph
Every now and then I find myself looking through Ava’s memory box and I have a good cry. I always rummage through and reflect back on the moment in time she first wore her teeny tiny sleepsuit, she was 2 weeks old and she had worn nothing but a nappy since the day she was… Continue reading Memory Box
Someone once asked me, “how do you cope knowing your child is deaf and will never hear you?” To be honest at the time the thought never entered my head as something that I wouldn’t or shouldn’t be able to cope with. We never expected Ava to have medical issues, least of all to be… Continue reading Silence
