I was so looking forward to Christmas in the Appleby household this year. Ava being three and so much more advanced than she was last year I was hoping she would enjoy and grasp the concept… Oh how wrong I was. She knew things were going on, but nothing could prepare me for the morning… Continue reading That Time Of Year Again
Something I always feel really bad about is that when you have a medically fragile child, if you have other children that are seemingly “healthy” their illnesses are never really that bad. I often find myself saying “oh it’s just a cold”, “just a little virus”… But this week I felt really guilty. My youngest… Continue reading Poorly Ralph
When we welcomed our second child into this world I thought my problems would go away , I thought that the darkened moods that hovered around me would go – I’d hoped I’d got the child I had been mourning when Ava was born. And I didn’t. I was desperate to fill a void, that… Continue reading New life
Recently in the area that I live, the disabled community have been getting a right bashing about parking. A local supermarket has supposedly put even more disabled bays in their car park and shock horror they have moved the mother and child bays further away from the store. Now as not only a mother, I… Continue reading Disabled Parking
This is a bit of a weird one, my partner and I had a discussion the other day about how when another child is sick, and I mean just your average poorly, we struggle to empathise. It’s not because I am heartless or cold or all reasons like that, it’s purely because I think when… Continue reading Feeling empathy and sympathy to other families…
To the parents that lost their shit today. because the nurses and doctors put my child first and not yours, I’m sorry. Actually I’m not sorry, because do you know what? I’ve endured 3 months in this hospital with my daughter fighting for her life, endless, tests, blood transfusions and operations and you are here… Continue reading My Daughter comes before your son.
When did life become so complicated? Ava’s been in hospital for pretty much 3 months now and it’s ridiculous, I’ve watched her fighting, crying, bleed out, had endless needles and catheters put in her. I’ve watched her writhing round in pain, begging me with her eyes to take away the pain, and all I can… Continue reading My Special Boy
It’s on a day like today I’ve made a 30 mile trip to the underground station to go and see Ava in gosh that I find some perspective on things. Yea things are pretty shit, but I’ll never forget last year doing this journey EVERY day…. I was also pregnant at the time. And do… Continue reading Perspective
I think my blog is a bit negative, I know it is, but, it’s somewhere I can come at a stupid time in the morning and just write how I feel. I can’t change the world, or my situation, it’s simply the cards I’ve been dealt and I just have to get on with it.… Continue reading One of those days…
As a sort of “ritual” I check out my ‘on this day..’ On Facebook. One thing that really struck a cord with me was that this time last year I didn’t put one single post up on my page. It’s blatantly obvious as to why, it was my daughters first Christmas and due to some… Continue reading Christmas
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