I never thought at almost 7 I would be changing my daughters nappy multiple times a day. I never thought at almost 18kg I would still be carrying her in my arms up and down the stairs, too and from the car or in and out of the bath. I never thought at almost 7… Continue reading Stuck
Life’s never easy, it never is and time seems to be passing by so quickly. I started this blog when I had two children, I now have 5 – (5,4,3,2 5 month old!) I have decided to start writing again; I need to vent how I am feeling and put it all into words, I… Continue reading Updated.
I was so looking forward to Christmas in the Appleby household this year. Ava being three and so much more advanced than she was last year I was hoping she would enjoy and grasp the concept… Oh how wrong I was. She knew things were going on, but nothing could prepare me for the morning… Continue reading That Time Of Year Again
I haven’t done a blog post in a while, I update my Facebook page regularly but that mainly focuses on the golden girl herself, where as this space is mine to tell all about my life and my little family. — if you ever want to check out my fb page it’s @avaappleby2014 😉 So… Continue reading New Start
When you were born and we learnt of your condition(s) I lost all hope. Any dreams and aspirations that I had been playing out in my mind for the last 9 months had gone. I didn’t believe that any of that was possible, I fully and whole hearted believed you would be better off if… Continue reading To My Daughter…
I shared a beautifully written poem today on social media. It is so simple but so poignant, it was short, but so eloquently written. It summed up in a few verses life with Ava and how people portray her. I’ve learnt a lot about myself and people since I have had my daughter. I’ve learnt… Continue reading Different
When did life become so complicated? Ava’s been in hospital for pretty much 3 months now and it’s ridiculous, I’ve watched her fighting, crying, bleed out, had endless needles and catheters put in her. I’ve watched her writhing round in pain, begging me with her eyes to take away the pain, and all I can… Continue reading My Special Boy
I cling onto memories, snapshots of my life and when I revisit something that stirs old memories it gets me thinking. These sofas I have sat on hundreds of times, if you’re a regular at GOSH you will recognise them. I’ve sat on these patiently waiting for my little fighter to come out of… Continue reading
As a sort of “ritual” I check out my ‘on this day..’ On Facebook. One thing that really struck a cord with me was that this time last year I didn’t put one single post up on my page. It’s blatantly obvious as to why, it was my daughters first Christmas and due to some… Continue reading Christmas
So, Ava can not sit unaided and her muscle tone is very poor, she also has a tendency to lop to one side. To aid her she is being fitted with a specialist chair today that should help build her strength. We already have a chair called a “tumble forms” and it’s actually helped loads… Continue reading An Exciting Day
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